Join Colm and an incredible lived experience panel as they discuss the role of the dementia activist, advocate, and champion and the personal and professional partnerships involved in ensuring the voices of those living with dementia are heard.
On this panel, we have the professional partnership representatives of Joanna Fozard and Agnes Houston. Joanna is employed by ‘The Dementia Centre’ as Agnes’ personal assistant and supports Agnes to fulfil her activist role and provides feedback and insight to HammondCare on how to support someone with dementia to continue as an advocate. Agnes has campaigned for the improvement of the lives of people with dementia in Scotland and was awarded an MBE, a Churchill Fellow and has written a book detailing her experience 'Talking Sense': Living with sensory changes and dementia' .
Joining us also on this panel are John Quinn and Glenys Petrie. John was diagnosed with younger onset dementia and alongside his partner Glenys, have used their experiences and knowledge to campaign for those living with dementia and empower those with a diagnosis to live their best life.
To read more about the incredible life story of Glenys and John the University of Queensland have compiled their story here.
There are also many amazing advocacy programs across the world such as ; the Edinburgh Centre for Research on the Experience of Dementia Australian Dementia Advocates Program and this directory of resources.
Together this panel illustrates how activism and dementia care are linked through the incredible efforts of both the individual and their support network.